Tuesday, March 10, 2015

Dental Causes of Chronic Fatigue Syndrome

 

Do you know what is hidden underneath your beautiful porcelain dental crowns?


I
f you are diagnosed with Chronic Fatigue Syndrome, it might be a good idea to get copies of
all of your dental x-rays and a list of all the metals used in your mouth. 

In addition to mercury toxicity - occult or hidden dental malignancies (specifically bone lymphoma) caused by carcinogenic dental metals, and beryllium poisoning, may be other causes of Chronic Fatigue Syndrome.


How to avoid getting ripped off by the dentist"For a dentist who practices alone, there's usually no one looking over your shoulder. It's easy to take advantage of people. You're basically given a blank check."

The following is a true story. 

I apologize that it is long one and that it jumps around a lot, but it took place over the course of the last 16 years, and I frequently edit it and add new things - so it is a work-in-progress and an ongoing developing story - but if you read thru to the end, it explains why the above listed dental causes of Chronic Fatigue Syndrome will never be made known to the public or to those suffering from these particular causes, even to this day. 

This is why I believe that Chronic Fatigue Syndome is not a "stealth virus" but a stealth malignancy:


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WARNING: Contains some disturbing and upsetting images. However, I feel that I must include these images in order to tell my story because none of the abnormalities that can be seen in these images are listed in any of my medical or dental records, or radiology reports, and without including these images, well . . . it might be hard for you to believe my story. 


******

On March 2, 2000, I was solicited to the dental office of Theresa F. Keefe, DMD, (a.k.a. Dr. Tracy Keefe) because she wanted to pay for my decorative painting services in her house, which she owned with her husband, hematologist/oncologist and anatomical pathologist Zia Rahman (St. Francis Hospital) by providing me with cosmetic dental care. 


Normally, I didn't like to barter as I was a single mother and needed cash to pay for rent and food, etc. I also had a dentist who I saw on a regular basis. However, I did need something to replace the missing teeth in my lower right mandible due to a recent extraction by my regular dentist, either a partial denture or some bridgework and my dental insurance did not cover bridgework, so I agreed to barter with her for dental services. 


During my first visit with her she took this x-ray of tooth #30 and the surrounding bone in my lower right mandible:



Now, you don't have to be a rocket scientist to see that there is something kind of wrong with this picture.

Unfortunately, Dr. Keefe never showed me this x-ray and never informed me that I had root tip resorption in tooth #30, or that the extraction site from tooth #28, which was pulled by my regular dentist seven months prior due to complete resorption of the root (caused by a metal pin in the tooth), had not yet healed, as shown in this photograph of my jawbone, also taken by Dr. Keefe and concealed from me for several years: 


The way she tricked me into obtaining this photo without my getting suspicious was by telling me that she was inspired by my interior decorative painting portfolio to start taking "before and after photographs" of her cosmetic dental work and start her own portfolio. She then took this "before" photograph on April 3, 2000 . . . but curiously, never took an "after" photograph:



A case of oral non-Hodgkin's lymphoma presenting following a tooth extraction is reported. The clinical presentation was that of a periodontal lesion and an extraction socket that failed to heal.
"Swelling, ulcer, or discomfort may be present in the region of the lymphoma, or it may mimic a periapical pathology or a benign condition." - Diffuse Large B-cell lymphoma of mandible: A case report. 

Dr. Keefe then lied at least THREE TIMES in my dental records by specifically writing that my oral cancer exam was "within normal limits", that my bone x-rays were "within normal limits" and that I had no root tip abnormalities:



Unfortunately, I did not have access to the above x-ray until October 25, 2002, when I asked Dr. Keefe for copies of all of my dental records with her, or to the above photograph until August 24, 2004 (five years after tooth #28 was pulled), which I was only able to acquire through attorneys. 

I believe that Dr. Keefe falsified my records in order to get $5000 worth of decorative painting services for her home. And for reasons far more nefarious . . .


Had she told me the truth on March 2, 2000, I would have NEVER allowed Dr. Keefe (who has post-graduate training in dental oncology and head and neck cancer, is a Clinical Professor of Dentistry at UConn Hospital, and trained with Ellen Eisenberg, head of oral pathology at UConn Dental) to place an allergenic, toxic and carcinogenic nickel-beryllium-chromium metal post into tooth #30 and a cosmetic dental bridge over a potentially cancerous non-healing ulcer in my jawbone and cover it up so that no other dentist or doctor  could see it.


You would think that with all her post-graduate training in oncology, she'd be the first person to recognize the signs of cancer, and the last person to sell you a carcinogenic nickel-beryllium-chromium bridge, right?


What is particularly awful about her concealing this ulcer in my jawbone is that:

"Primary bone lymphoma that has not spread to other areas of the body can be often cured. Using both chemo and radiation, 80-90% of individuals can achieve a cure." lymphoma.about.com

This is an x-ray she took during one of my cleanings with her, on December 2001, to check in and see how her bridgework was doing. I believe that she started scheduling me for regular cleanings in order to prevent me from going back to my regular dentist or to anyone else. 

Even though regular cleanings were covered by my dental insurance, which she did not take, I was happy to pay her $100 cleaning fee to support her business because we were friends (or so I thought):



Notice the osteosclerosis (seen in bone lymphoma) and the widening of the periodontal ligament space next to where her custom-designed carcinogenic nickel-beryllium-chromium bridge cuts into my jawbone? 

Both signs of cancer

Also, the post in tooth #30 looks like it has caused the entire root to resorb now and the adjacent bone to turn black.


Beryllium can cause osteogenic sarcoma, and there was even a lump of reactive bone (reactive fibrosis is seen in bone lymphoma) that grew around Dr. Keefe's post and core. 

It can also cause berylliosis, an incurable lung disease, and a form of metal poisoning caused by the inhalation of beryllium dusts, vapors, or its compounds or implantation of the substance in the skin.:


"The onset of symptoms can range from weeks up to tens of years from the initial exposure. In some individuals a single exposure can cause berylliosis."
Health effects of beryllium

Beryllium is not an element that is crucial for humans; in fact it is one of the most toxic chemicals we know. It is a metal that can be very harmful when humans breathe it in, because it can damage the lungs and cause pneumonia.

The most commonly known effect of beryllium is called berylliosis, a dangerous and persistent lung disorder that can also damage other organs, such as the heart. In about 20% of all cases people die of this disease. Breathing in beryllium in the workplace is what causes berylliosis. People that have weakened immune systems are most susceptible to this disease.

Beryllium can also cause allergic reactions with people that are hypersensitive to this chemical. These reactions can be very heavy and they can even cause a person to be seriously ill, a condition known as Chronic Beryllium Disease (CBD). The symptoms are weakness, tiredness and breathing problems. Some people that suffer from CBD will develop anorexia and blueness of hands and feet. Sometimes people can even be in such a serious condition that CBD can cause their death.

Next to causing berylliosis and CBD, beryllium can also increase the chances of cancer development and DNA damage.

It makes me wonder if these Chronic Fatigue Syndrome "clusters" that epidemiologists find are composed of individuals who all use the same dentist. One who increases his profits by using cheap "economy" nickel-beryllium-chromium alloys. 

Also, Chronic Fatigue Syndrome became known in the 1980s and was called the "Yuppie Flu" back then. What did Yuppies do in the 80s? They capped their teeth and had a lot of cosmetic dentistry done. 

I had most of my teeth capped and crowned in the 80s, by the time I was 21 years old. It was done at a corporate chain dental office in the West Farms Mall, and I'm pretty sure that economy alloys were used under all of my crowns and bridgework. 

Then, over the years, I started to lose some of these capped teeth and amalgam filled teeth due to "infections" underneath them. 

Another source of beryllium exposure through dentistry is metal braces. So before you say, "Well I have Chronic Fatigue Syndrome but have never had any cosmetic crowns or metal posts put in my mouth" ask yourself if you have ever had metals braces placed on your teeth. 

It only takes a minute amount of beryllium to cause serious health effects in someone with a genetic disposition and sensitivity to beryllium. 

Beryllium is also listed as 1 of 4 possible causes of reticulum cell sarcoma (bone lymphoma) on ToxNet:



Nickel causes bone lymphoma, aka reticulum cell sarcoma, aka histiocytic lymphoma, a lymphoma of the connective tissue, and I was diagnosed with a connective tissue disorder (positive ANA titer, 1:640, speckled) soon after this bridge was installed. 
Genetic and Epigenetic Mechanisms in Metal Carcinogenesis and Cocarcinogenesis: Nickel, Arsenic and Chromium
Metallic Implant-Associated Lymphoma
Increases in sarcoma and lymphomas with bone involvement due to metallic implants containing high levels of nickel.  
Metals (nickel, chromium) as a risk factor for lymphoma.  (Lymphomation.org)
Heavy metal (monoclonal) bands: A link between cutaneous T-cell lymphoma and contact allergy to potassium dichromate, nickel and cobalt?

Beryllium also has toxic effects on the hypothalamus and on calcium and bone metabolism, and after the installation of her crowns and bridgework, I began to have multiple endocrine problems and high ionized calcium levels. 
There is evidence cited by the EPA that beryllium may cause cancer when an individual is regularly exposed during his/her lifetime above the EPA defined exposure limits. In addition, the New Jersey Department of Health states that beryllium can cause lung and bone cancer in humans and has definitely been shown to cause these cancers in laboratory animals.

On July 24, 2002, I visited her at her office to complain of pain and swelling underneath the bridge and increased symptoms of fatigue. I was very concerned that the bridge might be causing me bone cancer. She told me that she could not see any swelling, that bone growth was a good thing, and encouraged me to look for other causes of my fatigue. She also encouraged me to leave the bridge in because "it looks so good." And advised me to take ibuprofen for the pain. 

On August 23, 2002, in another attempt to get her to help me, I emailed this letter to her:




"Recent studies have identified low levels of C3 and C4 as markers of unfavorable outcome, such as lymphoma, severe disease magnifiestations and premature death." - The Complement System in System Autoimmune Disease

Please note that she also stated in her original examination record that my attitude was good and all of my doctors have always stated that I had a very pleasant personality and things of that nature. 

I have always greatly admired the medical profession and always been a huge lover of science. I was never a difficult patient and you can see my attempts above to work with her as a partner in my dental care. 

And in my email to her, I was very sensitive and empathetic towards her with respect towards any feelings she might have had for having hurt me, unintentionally of course.

So she agreed to meet me at her office on September 2, 2002 to discuss, as long as I did not bring my new husband, whom she was afraid of for some reason, and then, to my surprise . . . she very coldly refused to remove these allergens and carcinogens from my mouth unless I paid her another $3500 for a replacement bridge. 


She told me to stop reading things posted by all of those "whackos on the internet" who think that nickel and mercury are toxic and that their dental metals are making them sick. 


She assured me that she was my friend, and that she would never do anything to hurt me. 

When I asked her why I was having so many horrible symptoms, she curtly replied "I don't know. Maybe you are just a sickly girl."


After repeated requests for a list of all the metals she placed in my mouth, she finally sent me a letter in February informing me that the alloy she used to fabricate my bridge and post and core was called Unitbond. 




I then called Jensen Industries, the manufacturer of Unitbond, and they told me that Unitbond was contraindicated for use in posts and cores.


Why? Because the MSDS for the 78% nickel with beryllium alloy (Unitbond) used in my mouth by Dr. Keefe warned that it was toxic and caused tumors and fatigue. It should not be used in the jawbone or even touch the bone when it is under crowns. And you can see in Dr. Keefe's follow-up x-ray above that the alloy cuts into the bone underneath the bridge.


This was the technical detail and warning posted on Jensen Industries website regarding Unitbond:



And here are portions of the MSDS for Unitbond:





According to the Learned Intermediary Doctrine, health care practitioners are bound by law to pass along manufacturer warnings to patients. Dr. Keefe never passed along any of these warnings to me. 

Unitbond was removed from the market shortly after my phone call to Jensen Industries.. Good. At least she can't use this alloy anymore and hurt other people. 

I then obtained this letter from my allergist: 



"Heavy metals, such as iron, chromium and nickel, are the main constituents of foreign bodies found in cells. Occupational or incidental heavy exposure to many chemicals, including benzene, pesticides, ethylene oxide and metals (mercury, cadmium, chrome, cobalt, lead, aluminum) is very dangerous for the hematopoietic system. Mercury and chromium cause immunosuppression and evoke autoimmune reactions." ~ Intracellular heavy metal nanoparticle storage: progressive accumulation within lymph nodes with transformation from chronic inflammation to malignancy.
 Allergy related to dental implant and its clinical significance.

I also tested allergic to nickel, chromium, mercury, aluminum, and beryllium and other metals, but not gold and other high noble metals, by MELISA lymphocyte proliferation testing.

Still, after another request to remove the bridge and post and core, Dr. Keefe refused. 

When I mentioned that Unitbond was contraindicated for use in post and cores, she very coldly replied "But it is not illegal . . . "

She then told me that I would never be able to prove that dental metals cause CFS or cancer, that no oral surgeon will ever biopsy my jawbone, and that I will never be able to prove I have cancer, implying that there was nothing in my jawbone to biopsy, there was nothing there, and that I was just crazy. 

She also told me that no dentist will remove the bridge without my purchasing a replacement bridge, because I can't walk around with a big whole in my mouth. In other words, I would have to pay someone $3500 to remove and replace the bridge. 

Well, it wasn't going to be her because now I didn't trust her. 

So I filed a suit in small claims court to get my money back for the bridge, so that I could have another dentist replace it and to assert my rights as a dental consumer. Also, I did not want to be a guinea pig for dental carcinogens. However, she then had her attorneys motion it over to the regular docket.



SMALL CLAIMS LAWSUIT transferred to regular docket by Dr. Keefe: Click here to see how difficult it is to get the carcinogens she places back out of your mouth.

Basically, in order to save herself $325 (mark-up on bridgework is 10-fold), after I already provided her a total of $5000 in decorative painting services (for a 4-unit bridge and two crowns, which also caused swelling in my jawbone, but the limit in small claims court was $3500 at this time), and just replace the bridge that I did not want in my mouth, she decided to try to turn this whole ordeal into a medical malpractice case and make it a fight to the death to get that toxic nickel bridge and post out. 

I honestly did not know at the time that medical malpractice cases are considered a fight to the death, but I would quickly find out.

I called her attorneys and asked them to please settle this out of court for $3265, so that I could just get the bridge out, get a replacement bridge and just move on with my life. 

I thought they'd understand and be nice and just settle. 

But they refused. 





And then I thought, "Okay, well, maybe her lawyers think I deserve more . . ." After all, lawyers are supposed to be about justice, right? 

(I would later learn that they transferred it and tried to turn it into a medical malpractice case because they knew I was not going to get any experts).

So I talked with a few attorneys and one of them advised me that as a Breach of Contract claim, I had a duty to mitigate damages. This meant, getting the bridge out and finding out what was underneath the bridge and getting it treated. 

Another one helped me get the requisite expert opinion I would need to proceed in civil court:






Dr. Breiner had also told me, on the phone, in previous discussions with him a couple of months earlier, that the tooth that Dr. Keefe placed the toxic metal post into was no good (I had sent him copies of her x-rays). He also advised me to get to an oral surgeon immediately.

However, shortly after we got this expert affidavit, this attorney called me and told me that his office was broken into and many boxes of legal records were stolen (but not mine), which really spooked him.

He said he thought this was just going to be a little nickel allergy case, but it was not and that he would not be able to help me with my case at this time.

But he did instruct me on how to file the expert affidavit with the court, which I did.

He also told me to read Dr. Breiner's expert opinion very carefully . . . "all the other metals (i.e., beryllium, chromium), evidently exceeded her threshold for toxins . . . " 

That sounds like cancer to me.

Wikipedia's List of IARC Group I carcinogens includes beryllium, chromium and nickel.

Another attorney helped me conform my Complaint to the civil docket. I happened to be painting a new bathroom addition off the master bedroom in his home, and on the day before the revised Complaint was due in civil court, he told me that he wanted more veining in the marble. So I agreed to provide him with a couple more days spent on veining in exchange for conforming the Complaint for me. He was able to do so by talking into his dictation device, in about 15 minutes. I was impressed. His office faxed over the Complaint to Hartford Superior Court within an hour of closing the next day.

It was conformed as a Breach of Contract claim for failing to put a bridge in my mouth that would be in a good and safe condition for use in my mouth and not cause adverse health affects. 

The bridge was also cracked and broken and had a loose post and core the entire time it was in my mouth.

It was also a Failure to Obtain Informed Consent claim for not properly disclosing all the contents of the procedure (including a bad tooth, bone lesions and then, as I would discover a year later, an ulcer that was concealed by the bridge) and not informing me of the risks involved in undergoing the procedure, including the risk of death.

Because the name of his law firm (Brignole) was on the fax stamp on the top of the Complaint, Dr. Keefe's attorney's must have figured out who it was that helped me conform the Complaint, because he came home the next day while I was painting, all upset, and told me that "it was an accident, she didn't mean to do it."

Oh, okay. She "accidentally" put a contraindicated and carcinogenic alloy into a tooth that was no good and over a jawbone lesion that she didn't tell me about.

Did he really think a jury would buy that it was an accident? 

I asked him if he knew Dr. Keefe.

Never saw her before in his life, he replied.

Well, you should go meet her. Talk to her. At her home, not her office where she puts on a very different face. Ask her what she thinks of cancer patients and what she thinks causes cancer. Ask her what kind of families she thinks children with leukemia come from . . . she will tell you that they come from families from "the lowest walks of life" and that she has no compassion for them. 

Ask her about her sister, whom she calls "Crazy Mary" and yells at all the time at home. 

Go talk to her, and then tell me if you would let your wife or children go to her. 

He then told me that I also had a lawsuit against UConn. 

Why? I asked. What did they do?

They have no control over what a dentist puts in my mouth. A dental device is a prescription device that must be prescribed by a dentist. And dentists never share the contents of these prescriptions devices or our dental records with our doctors. 

Or do they?


On discovery, he said.

What did he mean by "on discovery"? 

Did she talk to my PCP there, whom I had listed as my doctor in her records? When I obtained copies of all of my records from UConn, there was no mention of his having any conversations with her in any of his records.

But his records also contained multiple "history-taking" errors where he misinterpreted much of what I told him, so his records were not very reliable anyhow when it comes to conversations.  

However, that this attorney came home and said "it was an accident, she didn't mean to do it" was this first indication I had that Dr. Keefe had indeed done something really bad to me, and it wasn't just my imagination that her dental treatments were making me sick, and that it was intentional. 

In the State of Connecticut, there is no criminal statute that covers doctors falsifying records. So they can lie to their patients all they want.

But they can not lie to lawyers under oath.

But you are still going need experts he told me. 

Plaintiff has the Burden of Proof. 

Then I will call Dr. Keefe and all of my treating physicians at UConn as my expert witnesses. 

They can't lie under oath.


And if it truly was an "accident", then her attorneys will want to settle this case right away, so that I can get treatment.



 *******************************************************

Getting the bridge out ended up being the easy part, as once I learned that the tooth was no good, I gave up on wanting a replacement bridge and simply had the bridge and tooth removed.

However, getting an oral surgeon, doctor or radiologist to tell me what was underneath the bridge and help me mitigate damages would prove to be the hard part.

Really hard.

For the next year, I could not even get an appointment with most local oral surgeons, they refused to see me for "legal reasons."

And the ones that did see me, and took my money, and told me that they could not see any lesions in my jawbone. 

I tried to tell some of them that I wanted to prove that nickel-beryllium alloys can cause cancer in the jawbone, to help other people. 

And they'd say "Well, it's not going to be me. I don't want to be the one to prove that dental metals cause cancer!" 

Or took my money and tried to sell me $30,000 treatment plans, including implants into the jawbone, right into the lytic lesions!

I even made an appointment in Boston, MA, and was turned away when I arrived. The oral surgeon said that he could not see me, after driving all that way.

I was completely unaware at the time that there were highly unethical internet sites such as "Doctor's Know Us" (started by a group of US radiologists).
"It claimed it was "plaintiff information for doctors" and the point was to alert doctors about patients who filed lawsuits, so those doctors could avoid them." 
Have You Been Blacklisted, Blackballed or Denied Medical Care?
Great. 

So now, despite my pleasant personality and good attitude, I had become a difficult patient, and blacklisted by oral surgeons, simply because I wanted to know what was underneath that bridge. 

Wouldn't you want to know??

One attorney told me that they were just going to drag this case out as long as they could.

I guess they were expecting I'd be dead before the case reached trial. 

And Dr. Keefe had dental, oncology and pathology connections that would make sure that my jawbone was never biopsied. 

Plus, her attorneys would be paid more the longer they dragged this out. They filed an excessive amount of motions and interrogatory questions, took four-day long depositions, and ordered me to be evaluated psychiatrically, during the five years that the case was in litigation. One attorney told me that Dr. Keefe's attorneys easily made $100,00 - $200,000 defending her. 




                                     ********************************************

Immediately after filing my conformed Complaint, Dr. Keefe requested a jury trial. All malpractice cases filed in court are heard by a judge, unless one of the parties requests a jury trial. 

She knew that judges are extremely intelligent and cannot be manipulated the way a lay jury can. 

Plus, a judge, knowing that she falsified my dental records, would have decided the case in my favor. 

Which is also why she transferred my small claims court case to the regular docket. 


********************************************

After repeated failed attempts to have an oral surgeon look at my jawbone, I drove myself to the ER at Charlotte Hungerford Hospital.

I told them I thought the metals in my jawbone were making me sick.

I brought all of my MRI scans from UConn and St. Francis Hospital with me. 

Could I please get a biopsy of my jawbone?

Avram Berger, DSS was their hospital oral surgeon.

Then I sat there for what felt like an hour, while they called my doctors to discuss. That's what they do when you go to the ER, they call your doctors.

After talking to my doctors, the ER doctor came in, looking a little resigned and told me, "Well, your doctors are really messing with your head . . . " 

 The next thing I know, three security officers come in and put me in a wheelchair and bring me up to the Psych Ward.

Diagnosis: Delusional Disorder




An obvious and thoroughly disgusting attempt to discredit me during trial. 

The intake nurse asked me all kinds of questions and then said "Well, you answered all the questions right, and you are very coherent. You don't seem to be psychotic. Do you know why you were sent here?"

No. Why?

"Because you have a thought disorder. You think nickel is toxic."

Isn't it?

"Nickel is an essential element. Do you realize how bizarre it sounds when you come into the ER and tell the doctors that the nickel in your jawbone is making you sick?"

Straight out of One Flew Over the Cuckoo's Nest. 

I wished I had a film camera on me. 

She also deposed my treating psychologist after he filed this affidavit and tried to convince him that I was a delusional liar, that there were NO lesions in my jawbone, and warned him that he was about to testify against another "professional":




During four 8-hour depositions at her attorney's office she would show up in her gigantic gas guzzling black SUV with a "Support Our Troops" bumper sticker, wearing powerful dark clothing, sit across the table from me, and glare at me with extreme hatred the entire time. 

The very first time the attorney I hired to sit with me during depositions, a criminal attorney, saw her, he turned to me and whispered "She looks like the Wicked Witch of the West. The jury is not going to like her at all."

Yet I had no hatred for her at all, even after what she had done to me. I even thought that what the attorney said to me was mean. I just wanted answers, I just wanted to know what was in my jawbone, and I just wanted to understand why she did this to me. 

I had imagined that the first time I saw her there would be an awkward exchange of glances and sadness and regret that it had come to this in both of our eyes, but the first time I saw her was when I walked into the bathroom before the first deposition. She was preening herself in front of the mirror, putting on make-up!! and when I saw her she looked at me in disgust and stomped out of the bathroom, making a loud noise with her high heels as she quickly exited as soon as I entered the stall. 

I will post the portions of the deposition soon where I had to interrupt the questioning to tell her to please stop looking at me like that. She didn't bat an eyelash and just continued to glare. It was the first time anyone had ever looked at me like this before and I didn't know what to make of it. 

It made me wonder what she would have done if the roles were reversed here, and I was the one who put a contraindicated toxic and carcinogenic post into a bad tooth and over a jawbone ulcer in her mouth. 

She never once showed any signs of remorse or empathy or apologized, a sign of sociopathy, and this was an article posted by UConn shortly after I filed suit and had a conversation with my treating psychiatrist there (everyone with CFS is first diagnosed with "depression" and treated with antidepressants) about Dr. Keefe and her lies: 


UConn: The Killers (and Liars) in Our Midst:
So how do you recognize a sociopath if you happen to meet one in your daily life? Stout urges readers to practice what she calls "the rule of threes." One lie or broken promise or neglected responsibility may simply be a misunderstanding. Two may involve a serious mistake, but "three lies says you're dealing with a liar, and deceit is the linchpin of conscienceless behavior," Stout writes. "Do not give your money, your work, your secrets or your affection to a three-timer."

They teach them to hate. They teach them to judge. They teach them to separate. They teach them to feign superiority. They teach them to worship their egos. They teach them to shoot. They don't teach them about love. They don't teach them to connect. They don't teach them to understand. They don't teach them to move from their hearts. They don't teach them that we are all walking this journey together. And then they “didn't see it coming”. They “can't believe he would do this”. They can't understand how he could take innocent lives because, after all, they just meant for him to hate- not for him to hurt. Are you for real? Until we understand- deeeeeeeply understand- that what we model and teach to impressionable children often becomes their truth- there will be no stopping the bleeding. Not a chance. If you aren't capable of raising children with a genuine love for humanity, then do us all a favor and raise goldfish instead of children. There ought to be a law...
~ Jeff Brown, on people who commit hate crimes


As we got close to trial, my dental expert (Dr. Robert Kulacz) called me to tell me that he had just received a call from Dr. Keefe's attorney informing him that they were going to put me up on the stand and make the jury think I was crazy.

I was then sent a notice by the defense attorneys that I was to be sent to their psychiatrist for a psychiatric evaluation. Because I had spent the last five years trying to get a biopsy of the jawbone and no oral surgeon would biopsy it, and the last time I saw a psychiatrist was when I was thrown into the Psych Ward after attempting to get a biopsy in the Emergency Room, I requested that the psychiatrist arrange for a biopsy of my jawbone and this was their response:



At this point it becomes unclear now whether Dr. Keefe is now paying for her own defense. 

But . . . she spent all that money having me evaluated by a psychiatrist, who found nothing wrong with me. 

And I realized then that she had "gaslighting" me all along:


Sociopaths frequently use gaslighting tactics. Sociopaths consistently transgress social mores, break laws, and exploit others, but typically, are also charming and convincing liars who consistently deny wrongdoing. Thus, some who have been victimized by sociopaths may doubt their perceptions.

She then disclosed that she intended to call Dr. Robert Baratz as an expert:

In addition, Baratz, along with the American Dental Association (for which he is a spokesperson), believes dental amalgams to be safe and their alleged adverse health effects unproven.

Well, the reason the "alleged" adverse health affects of dental alloys is unproven is because no oral surgeon will biopsy our jawbones to help us prove it.

These are the faces of Dr. Baratz and Dr. Keefe. The two dentists who were going to try to convince a jury that, despite manufacturer warnings, known carcinogenic and neurotoxic metals are completely safe when placed in the human mouth, and that I had a psychiatric history of "delusional disorder":





And if you can imagine the face of Dr. Keefe, giving you what I now know is called "the sociopathic stare down" for four eight-hour days, that is what I had to endure during depositions. 

It was the most awful villainous scowl I had ever seen in my life. 

Once again, I wished I had a film camera on me. 


*********************************************


She also never claimed a contributory negligence defense:

Contributory negligence in common-law jurisdictions is generally a defense to a claim based on negligence, an action in tort. This principle is relevant to the determination of liability and is applicable when plaintiffs/claimants have, through their own negligence, contributed to the harm they suffered. 


Dr. Robert Baratz is also known to contribute to QuackWatch, and even after I was invited by the producers of The Dr. Oz Show to talk about mercury dental fillings on March 18, 2103, QuackWatch accused Dr. Oz of never taking a proper "history" of me before allowing me to appear on the show, though this article was later revised and the comment was removed. 

Perhaps Dr. Oz had informed them that they did take a proper "history" of me, as they found me via this blog:



Or perhaps Stephen Barrett realized that it was me, as I had communicated with him about Dr. Leonard Kundel (see more about Dr. Kundel further down this blog):



Anyhow, Dr. Oz's producers wanted me to say on national television that "I got my mercury fillings out and now I feel GREAT!" 

But I refused to say that because it was not true. 

So I told the truth. 

I said that I got all of my fillings out and then some of my symptoms went away (panic attacks, tremors, red rash on hands), but others persisted. 

My Chronic Fatigue Syndrome was not cured by the removal of my dental amalgams, and I knew that there were other much more serious dental causes of CFS, but at the time this show was produced, in 2013, I still did not have the biopsy-proven evidence I needed. 


**************************************************

This is a photo of the bridge that Dr. Keefe installed in my mouth:

It had a loose stainless steel post and core still attached, which means the bridge was broken the entire time it was in my mouth. I believe that this loose post and core was causing my respiratory problems, because that orange stuff under the core was leaking out into my mouth the whole time the bridge was in. 

Either that, or it is berylliosis, because I do also have a lung granuloma that was first appeared in 2002.


The 78% nickel with beryllium post and core installed by Dr. Keefe is on the right, and it is nasty looking. I was charged $265 for that piece of toxic metal. 

Removed June 5, 2003



This is what my jawbone looked like after the removal of Dr. Keefe's bridge and tooth #30.
Notice the two dark spots from toxic nickel and beryllium leaching out due to root resorption.
Root resorption is a sign of malignancy:

Photo taken October 2003

This is what my jawbone looked like in January 2004 after oral surgeon Avram Berger, DDS, sewed up the extraction site that failed to heal. There was thickening in the bone torus, which was removed but never properly biopsied. The mucosa is white and inflamed. There was no infection in my jawbone because I was never prescribed antibiotics by Dr. Berger. Dr. Berger assured me that this was what the normal healing process looked like after minor oral surgery. 

Lymphoma of bone is a gray-white fish-flesh like tumor that diffusely infiltrates the bone:

Photo taken January 16, 2004

This was the swelling in my jawbone and glands after the same very minor surgery:

Photo taken January 16, 2004

Dr. Avram Berger (who I later found out is a very long-time friend of Dr. Keefe's) then called my new PCP to tell her that I was delusional and that there was nothing in my jawbone. (He didn't know I had taken the above photographs):


When I called his office and asked him to please biopsy the jawbone, he yelled "Stop trying to micromanage my business!" and hung up the phone on me.

I could not understand why Dr. Berger, who was in his 60s at the time, would just willfully sit back and watch a young woman in her 30s, with two young children, suffer like this. I would then later discover, through access to LexisNexis, that Dr. Avram Berger was sued a few years earlier by the two adult surviving children of a 50 year old Torrington woman who had died because he had failed to diagnose an oral cancer in her. So clearly, this is not the oral surgeon you want to go to if you think you may have an oral cancer. 

Panorex, April 2004:
Lytic lesion in lower right mandible, sclerotic mass below her nickel-beryllium crowns on teeth 21 & 22, particularly tooth 22.


Occlusal x-ray of the bone underneath Dr. Keefe's work, April 2004:


X-ray of lower right mandible, April 2004, showing a moth-eaten permeative bone lesion, which is what bone lymphoma looks like on x-ray:


The above panorex and x-rays were taken at St. Raphael's Hospital in New Haven. They too refused to biopsy the jawbone, but did give me these copies and then sent me on my way with a "God Bless."


*************************************************

Here are some of my interrogatory responses in my lawsuit against Dr. Keefe:














The case was dismissed on the eve of trial, on a technicality. I did not have a trial attorney. I was a pro se litigant the entire time the case was in litigation, which was over five years.

Plus, a few days before trial the defense filed a whooping FIFTEEN Motions in Limine, asking that all of my evidence be barred from being presented to the jury, including this expert opinion:






THIS is the ring that I saw mentioned directly above:


And THIS is Dr. Thomas Manger's report. He doesn't have access to the MRI films? Of course he does, they were in the radiology department across the street from his office. That is where I was able to access them to post the picture above. If the MRI technician had never allowed me to look at the MRI scan, I don't think Dr. Manger would have ever told me there was something there. 



He writes "Apparently she has been diagnosed with narcolepsy..."

I guess he was never cc'd: 


In hindsight, I think he knew exactly what it was and was covering for Dr. Keefe, as I listed him as my PCP in Dr. Keefe's Patient Registration and Medical History Form:




At the time though, unfortunately, I did believe it was an "artifact" because I completely trusted Dr. Keefe. 

I considered her to be a friend. Our children went to school together and we often went to Cub Scouts meetings together. We even painted our Pinewood Derby cars together at her house. Though I did find it strange that she brought home lead sheets from the dental office and glued them under the cars to weight them down. Really? Lead sheets on children's toys?

Well, I hope you like the living room, dining room and 2-story foyer I painted for you Dr. Keefe.


I worked really hard to make your home more beautiful and used only non-toxic materials.


I even found a big hole in one of your walls, behind a door, that you didn't even know was there, and fixed it for you. 


Had you not been happy with any of my work, I would have painted it over, for free


And if I had accidentally spilled paint all over your carpet, I would have called my insurance company and had them pay for the damages. 


Here are some before and after photos of the dining room:



Before:


As you can see, I made and brought over many sample boards and gave her numerous choices. 

She chose a translucent metallic platinum.


After:




***********************************************

I now know that that was a ring-enchancing lesion. That is what lymphoma looks like on MRI.

It is possibly mucosal, or mucosal inflammation at this point? 

But when I told Dr. Manger  that my symptoms felt like I had lymphoma, and asked him if there was any chance the "artifact" could be cancer, he said "if it is cancer, it will make itself known."

What the heck was that supposed to mean? That early diagnosis of cancer is not possible with modern radiology? That it is not possible to detect smaller occult cancers with modern radiology? That if it is cancer, I will know because I will die? 

Besides, bone lymphoma never "makes itself known." It is a destructive bone cancer, not an expansile bone cancer. 

After two years of begging him to help me figure out the cause of CFS, not just for me, but for other people suffering as well, and having a difficult time getting him to run more tests . . .


(Not sure how he even got his medical degree when he doesn't even know how to spell the word pituitary. Sorry if that sounds mean, but he was extremely dismissive of my complaints and extremely negligent with my care for two years. My morning cortisol, by the way, was very low. 5 and 8 on two separate occasions, and further adrenal testing revealed "secondary adrenal insufficiency." )

. . . he eventually finally suggested I look into functional medicine, a form of medicine that addresses the underlying causes of disease, including genetics

That suggestion, along with that bright ring around my jawbone, which I thought at the time was metal artifact, lead me to start researching the affects of dental metals.

"A nearly five-fold significant increase in risk of narcolepsy was observed for jobs with exposure to heavy metals such as lead, mercury or arsenic, with a significant trend according to severity of illness from exposure." Environmental toxins and risk of narcolepsy among people with HLA DQB1*0602

And when I switched PCPs after feeling like I was not getting much help at UConn, other than being told to look into functional medicine, but their not helping me figure out what the underlying causes of "Chronic Fatigue Syndrome" were and leaving all of the research to me, despite their supposedly being a "research hospital", this was the letter my neuro-oncologist wrote to my new PCP:







Dr. Koff simply suggested I take lots of vitamin C and get "better insurance." 


 ***********************************************


And speaking of underlying causes of disease, nickel is also linked to breast cancer, another cancer that Dr. Keefe's husband treats:

The role of cadmium and nickel in estrogen receptor signaling and breast cancer: metalloestrogens or not?


And the State of Connecticut has the highest per capita rate of breast cancer in the nation.

She did admit that beryllium can cause lung cancer, and lung cancer rates in women are also sky-rocketing. I think it is now the top cancer diagnosis in women.

So why does she use beryllium alloys when she knows it causes lung cancer?

I also had a mammogram done in 2003, two years after the installation of her 78% nickel post into my right mandible, that showed calcifications in my right breast ("probably benign" the radiology report stated).  


*************************************************

While Dr. Breiner was an ethical holistic or biological dentist in my opinion, I had an experience with another holistic dentist from 2006 - 2008, who was not so ethical.

This experience was an attempt by me to obtain a biopsy of my lower right mandible, because no oral surgeon would biopsy my jawbone, to confirm my own suspicions of bone lymphoma and obtain real evidence-based medical treatment.

If Dr. Keefe is the ultimate Dental Bully (and she is), Dr. Leonard Kundel is the ultimate Dental Charmer: 

Dentists to Avoid – Dental Bullies & Charmers


I am the D.H. mentioned in the above case. Dr. Kundel deliberately misdiagnosed lesions in my jawbone as "osteomyelitis" and "benign cysts" in order to defraud me. 

He was even told that I had reticulum cell sarcoma and lymphoma by my PCP at the time - diagnosed radiographically, but in need of a biopsy for treatment - and still insisted that these were "benign cysts" that should be surgically removed for $1700 each. 






But when he informed me that he would be doing biopsies of the bone, I went ahead with the extractions because I needed a biopsy confirming bone lymphoma in order to get medical treatment:




And when I specifically instructed him not to decalcify the biopsy samples, as bone lymphoma biopsy samples cannot be decalcified. But he completely ignored my instructions and decalcified all bone biopsies in the maxilla and one biopsy in the mandible, despite paying him $17,500.00 to help me. 


Here is his biopsy report for the mandible:


Once again, he decalcified the biopsy sample. And he also took the biopsy from the wrong area, as he took it from he premolar area, which is the white area in this x-ray of my mandible (indicating healthy bone):


After having a bone scan done at Stamford Hospital . . .


I showed the above report to Dr. Kundel and wrote him this email:


Hw simply wrote back "How would I know if it is lymphoma? No, I do not know."

Having a biopsy that showed lymphoma would have gotten me the real medical treatment I was looking for.

Even a very popular alternative cancer cure site says:

Note:While this website rarely says anything favorable about chemotherapy and orthodox cancer treatments, to be fair to orthodox medicine, Non-Hodgkins Lymphoma is one of the extremely rare types of cancer which does respond fairly well to orthodox treatments.

On Fri, Jan 19, 2007 at 7:02 PM, Leonard Kundel leonardkundeldmd@yahoo.com wrote:

forget about those people. they live in a direfent reality, operate within diferent paradigm. you cant change them nor do you need to. just let them be.
(sic)

On Tue, Apr 10, 2007 at 10:47 AM, Leonard Kundel wrote:

i am only working on myself.

On Wed, Apr 11, 2007 at 8:22 AM, Leonard Kundel wrote:

notion of changing the world, to me, is naive.

He told me that he bought a Harley Davidson with the money he made off of me, and then left me for dead. 

Primary bone lymphoma: treatment results and prognostic factors with long-term follow-up of 82 patients.


Only much later did I realize that holistic dentists who perform jawbone surgeries send all of their biopsies to Jerry Bouquot, an out-of-state pathologist, to confirm their "benign" lesion and "osteomyelitis" diagnoses in order to justify their exorbitant fees, and that because he is an out-of-state pathologist, Dr. Bouquot is not allowed to diagnose cancer in Connecticut dental patients. 

He would not admit to any wrongdoing in the Connecticut case against him, because there is no criminal statute in Connecticut for falsifying medical or dental records in Connecticut. 

He did admit to wrongdoing in New York, because in New York, there is a criminal statute against falsifying records. Which is probably why he moved his practice from New York to Connecticut in the first place.


Link to blog post I wrote in 2009 about Dr. Leonard Kundel.


He was going to be my expert dentist in my case against Dr. Keefe, but then when I applied for litigation funding to hire a trial attorney, the funding company called me back and told me that he had defrauded me, so they would not fund litigation if I was going to use him as an expert.

I told them I'd get a new expert.

Then they told me that I was defrauded by Dr. Keefe too. 

They said "They both defrauded you. We can't fund the trial. Sorry."


********************************************


UPDATE, 15 YEARS LATER:

Looks like the "artifact" is still there. 

These are images from an MRI I had done at UCHC on 12/26/14. 

Again, none of these "artifacts" are listed on the radiology report. 

I was able view these images by downloading OsiriX to my home computer:

(Localizer image. Possibly mucosal? because there is no big tumor in my jawbone that correlates with it.)

(Localizer image, lower left mandible, lesion directly underneath where Dr. Keefe placed two nickel-beryllium crowns on teeth 21 and 22 fifteen years ago. Definitely down in the bone now. And there is a red welt along my jawbone now that correlates with this image.)


(T1 coronal post-contrast image: Looks like a tumor in ^ ^ the lower left jawbone now to me.   Lymphoma is low to intermediate signal on T1 images, gadolinium is bright. Gadolinium is a chemical compound given during MRI scans that highlights areas of inflammation. )






(I also have bright nasal turbinates on DWI MRI, which could be caused by lymphoma.)

"In the smaller volume lymphomas, there is a tendency to spread a a diffuse thin sheet of tumor along the walls of the nasal cavity to envelop the nasal turbinates." Radiological Imaging in Hematological Malignancies, 2004

If this is true (and it is of course) then the fatigue and headaches associated with CFS may be due to bright nasal turbinates (restricted diffusion) on DWI MRI, caused by small volume lymphomas in the jawbone (which eMedicine says can be difficult to diagnose without a high index of suspicion, so I think these small volume jawbone lymphomas may be highly underdiagnosed by dentists, as they mimic infectious processes).

I always suspected it was jawbone lymphoma, but I could never understand how these lesions would cause CFS. Now I get it. 


I don't know what the heck that ^ is, up in the brain, but it is probably being caused by the bright nasal turbinates. A second opinion MRI report simply states that it is an "abnormality along the floor of the anterior cranial fossa." 

I did bring the top picture only to an oral surgeon last month, who looked at it, said there was definitely a lesion in the bone and asked me why nobody biopsied this lesion 15 years ago. 

He then asked me to bring him the entire MRI CD the next day. After looking at it, he looked shaken, like he had seen a ghost. He then tried to tell me that these images were not mine because they did not have my name on them. I explained that DICOM images today don't have patient's names on them, but that my UCHC patient ID number (T00398783) is on them. He then told me that he was sorry but that there was nothing he could do for me now.

Bullshit.

Effective therapy for poor-prognosis non-Hodgkin's lymphoma with 8 weeks of high-dose-intensity combination chemotherapy.


This oral surgeon is also affiliated with St. Francis Hospital.

With the exception of the top two localizer images above, the last four images are also seen in a brain scan I had at St. Francis Hospital on January 7, 2012, for intractable migraines, but the radiology report simply says "Normal brain MRI" and makes no mention of these abnormalities. How can they be "artifacts" if they keep showing up?:


Abnormality in jawbone, St. Francis Hospital, 2012

Abnormality in jawbone, St. Francis Hospital, 2012

DWI of nasal turbinates, St. Francis Hospital, 2012

Abnormality along the floor of the anterior cranial fossa, St. Francis Hospital, 2012


But don't forget, Dr. Keefe's husband is a hematologist-oncologist at St. Francis Hospital and I'm sure he is friendly with all of the radiologists there. 

And all you have to do is google "radiology fraud" to see how rampant it is. 

And it is pretty clear from the fact that it was a group of radiologists in the U.S. that started DoctorsKnow.Us, that radiologists work for the doctors who send them business, and not for the patients. 

So what's next Dr. Keefe? I know that your husband is also an anatomical pathologist, who trained at UConn Health Center. Is he going to get all the pathologists in Connecticut to falsify my pathology reports too? My autopsy report?

Your iniquity knows no bounds.


****************************************************

Also, I have been studying genetics this past year, including having completed MIT's Intro to Biology with Eric Lander, and have had my genome sequenced by 23andMe. 

Dr. Tracey Keefe told me that only "whackos" think their dental work is making them sick and that only people from the "lowest walks of life" get NHL. 

Well, I don't think that is true. 

After spending a whole year studying genetics and searching thru my genome, I discovered this

I have a very rare genotype, which is seen in 0% of the CEU (Western European ancestry) population, or rather, less than 0.9%. This means up to 9 out of 1000 people of Western European ancestry may have this genotype. 

I am homozygous A;A (T;T) for Rs1913474


Rs1913474: [PMID 18636124OA-icon.png] Polymorphisms in the estrogen receptor 1 and vitamin C and matrix metalloproteinase gene families are associated with susceptibility to lymphoma.

This would certainly explain all of my hormonal (especially estrogen) abnormalities.

It would also explain why high-dose intravenous vitamin C can put reticulum cell sarcoma into remission, a treatment I underwent in 2005 and 2006 (though there were no changes in my before and after bone scans after 35 infusions, so I stopped): 


Reticulum cell sarcoma: two complete 'spontaneous' regressions, in response to high-dose ascorbic acid therapy. A report on subsequent progress.



****************************************** 

Mercury Exposure Increases Circulating Net Matrix Metalloproteinase (MMP)-2 and MMP-9 Activities

New genetic mutations found for non-Hodgkin's lymphoma.
"Risk factors for NHL also include exposure to toxic chemicals including vinyl chloride, herbicides (including dioxins, i.e. Agent Orange), pesticides, hair dyes and heavy metals, as well as ingestion of certain prescription cytotoxic drugs" ~ Non Hodgkins Lymphoma Medical Disabilities Guide

"A population based case-control study of residents of Los Angeles County found that the risk of non-Hodgkin's lymphoma among women decreased with increased consumption of alcoholic beverages. The risk of NHL was 50% lower among those consuming five or more drinks per week than among those who abstained from alcohol." ~ Alcohol and Non-Hodgkin's Lymphoma (Ahh, see, I quit drinking in the summer of 1992....)

“But in the back of my mind, I knew I was sick,” Karen says. “Of course I looked online at my symptoms, but I couldn’t really find anything. I’d had a lump under my jaw that had always been dismissed.” ~ Karen Allen Lymphoma Survivor

"The excess mortality was almost entirely related to deaths from cancer." Causes of Death Among Patients With ChronicFatigue Syndrome

"The three most prevalent causes of death were heart failure**, suicide, and cancer, which accounted for 59.6% of all deaths. The mean age of those who died from cancer and suicide was 47.8 and 39.3 years, respectively, which is considerably younger than those who died from cancer and suicide in the general population." ~ Causes of death among patients with chronic fatigue syndrome.

New Clinical Trial:Contact Allergies to Dental Metal as a Possible Risk Factor for Oral Cancer


** In severe cases, berylliosis may lead to heart failure .

*********************************************

Here is an x-ray of my jawbone taken nine months prior to seeing Dr. Keefe, on 6/19/1999. 

There was a lytic lesion with root resorption around an old nickel (and beryllium?) post in my teeth (tooth #28, the first mandibular molar) from a bridge that was placed there about 10 - 15 years earlier by a cheap private dentist in Los Angeles:



And while she never did ask who my regular dentist (from 1997 - 20000) was or ask to see his x-rays, she did have access to my dental history at UConn, which means she should have been able to see that I presented to UConn Dental Clinics with pain in tooth #28 on April 4, 1996. 

They took three x-rays of the tooth, and there was nothing wrong with it. It did not require additional endodontic treatment. Perhaps the pain was just the start of the above lesion. 

It also means that Dr. Keefe should have known that the bone lesion surrounding tooth #28 in the x-ray that she took was an early cancerous lesion. She could have at least asked me when the tooth was pulled. 


It also shows that I did go to UConn dental clinics on November 6, 2002, after being referred to them by Dr. Keefe to fix her mistake (because she doesn't work for free), for a full mouth series of x-rays and they did not disclose to me that there was anything underneath the bridge that Dr. Keefe had placed. 

Instead, they just told me that all they use is stainless steel, which contained nickel, so they could not help me, which is why I filed the small claims court case. 

Here are notes from my Sleep Medicine doctor shortly before I visited UConn on November 6, 2002:




***********************************************

I truly believe that Dr. Keefe knew exactly what she was doing and that the Connecticut Department of Health Investigators were right when they said, "Well, she certainly did not try to help you." 

How anyone who calls themselves a Doctor could sit back and knowingly not want to relieve someone from suffering, but then add to their toxic burden and cause more harm and suffering, is beyond me. 

And then, to top it off, have her victims thrown into lock down mental facilities and tell her friends, family and doctors that her victims are delusional in order to manipulate a jury. 

I do not believe it was an "accident" at all on Dr. Keefe's part.  

And in fact, Dr. Keefe's defense attorney, Dana Lee, is the grandson of Manfred Bennington Lee. 

Ellery Queen is both a fictional character and a pseudonym used by two American cousins from BrooklynNew York—Daniel Nathan, alias Frederic Dannay (October 20, 1905 – September 3, 1982)[1] and Emanuel Benjamin Lepofsky, alias Manfred Bennington Lee (January 11, 1905 – April 3, 1971)[2]—to write, edit, and anthologize detective fiction.[3] The fictional Ellery Queen created by Dannay and Lee is a mystery writer and amateur detective who helps his father, a New York City police inspector, solve baffling murders.

I don't know how attorney Dana Lee sleeps at night defending a dentist who would lie to her patient and then sit back and watch her die. I guess the money is good. 

He knew she lied. 

*******************************************************

As we sat on the benches in court, waiting to see the Judge Vanessa Bryant on the day she dismissed the case, Dr. Keefe's attorney told me that Dr. Keefe has offered to settle the case for $10,000 on the condition that I remove all my blog posts about her. 

I said I would only settle on the condition that she helps me get treatment.

I could care less about her ill-gotten money. 

Her attorney said there is nothing that can be done to help me now.

I smelled more bullshit again. 

Even when bone lymphoma is advanced and diffuse, it is potentially curable:

Advanced diffuse histiocytic lymphoma, a potentially curable disease.


And as I mentioned above, Rituximab, which has very low toxicity, also puts bone lymphoma into remission. 


Dramatical improvement of chemoresistant bone lymphoma with rituximab.


What he really meant to say was that by helping me now, Dr. Keefe would have to admit wrongdoing, and she was never going to do that. 

I didn't trust them at all. 

So I didn't accept her offer. 

Besides, it cost me $10,000 just to have an attorney sit with me during her marathon depositions, almost $20,000 to have bogus biopsies done, and many many years of pain and suffering that continues to this day because she will never admit to wrongdoing and allow me to get a diagnosis and treatment. 

The attorney then told me that Dr. Keefe may sue me for libel (making false statements) on my blog and that the only reason she hasn't yet is because all I own is an old Volvo. 

I found it appalling that she still didn't even care about my life or wanting to help me after making a "mistake". 

I would have dropped the lawsuit at anytime had she just admitted to her "mistake", apologized to me and tried to help me. 

But all she cared about was her own reputation and not being exposed. 

I told him to tell her to go ahead and sue me. 

Plaintiff has the Burden of Proof. 



*********************************************

When we stepped into the Judge Vanessa Bryant's chambers, the first thing she did was look at the defense attorneys and ask them if they had any money for me. 

They said no.

And she said, "Oh, really? Why not?"

They didn't answer, but I'm pretty sure the reason was her very inexpensive $1408 a year dental malpractice insurance policy, which I obtained a copy of during discovery, only covered a vigorous (and very expensive) defense for her, but would not cover damages in cases involving fraud

"However, if the claim involves a doctor who intentionally caused you harm, every insurance policy has a paragraph in there saying that they do not cover claims of intentional acts."

This would also explain why no attorney would take my case and why I had to represent myself the entire five and a half years the case was in litigation. 

Yet another reason why we need to criminalize the falsification of medical and dental records in Connecticut. 

Because this more-or-less gives doctors the green light to do anything to we outsiders--just as long as it is deliberate.

And medical malpractice insurance carriers should STOP paying for the defense of any practitioner who commits intentional malpractice. 

If they didn't, Dr. Keefe would have settled this in small claims court and I would have had my biopsy and treatment shortly thereafter.


*********************************************

Granuloma in lung . . . or beryllium poisoning

  • Exposure to beryllium
  • Positive blood test called BeLPT (beryllium lymphocyte proliferation test) that shows allergic sensitivity to beryllium
  • Granulomas in the lungs found with Lung biopsy —a sample of lung tissue is removed and tested


I'll probably never know. I can't get a biopsy in the State of Connecticut, remember? 
But I do have all of the above requirements for diagnosis otherwise. 

And a chest x-ray done 1999, the year before Dr. Keefe's beryllium alloy was put into a bad tooth and leached into my jawbone showed no calcifications/granulomas. 
Normal chest-x-ray. 

Based on my 2002 pulmonary testing results, I was diagnosed with COPD by St. Francis. COPD at 33 years old. Really? 


***********************************************************

Update 2/26/2015:



Had surgery to remove very hard swollen posterior cervical lymph node today. 

I had called an ENT doctor out of the area three weeks earlier, away from Hartford, to take a look at this lump on the left side of my neck that had been there for a year. 

Since I could not get a biopsy of the jawbone, and I figured that this is what Dr. Manger meant when he said "if it is cancer it will make itself known", I thought maybe this would contain the evidence I needed to get treatment. 

I called the office at about 4:00 in the afternoon on February 9 and they were able to see me the next morning at 10:00 due to a cancellation because we had a snow storm that day. 

The ENT surgeon looked at it and said it was a "hard cystic lymph node." No central punctum, so can't possibly be an epidermoid cyst. 

I told him I was having night sweats and fatigue, and also mild anemia and secondary adrenal insufficiency (which I believe can be caused by lymphoma as the body tries to control the inflammation it causes). 

So he recommended removing it and finding out what it was. 

Causes of swollen posterior lymph nodes include lymphoma and head and neck carcinoma.


[Uncommon cystic appearance of lymph nodes in malignant lymphoma]. 
Other potential causes of cystic lymph nodes:
Mechanisms of cyst formation in metastatic lymph nodes of head and neck squamous cell carcinoma.
Risk factors that doctors are investigating as a cause of salivary gland cancer but have not proven include exposure to certain metals (nickel alloy dust).  cancer.net
Occupational exposure to radiation/radioactive materials (OR = 2.4; 95% CI = 1.0-5.4) and nickel compounds/alloys (OR = 6.0; 95% CI = 1.6-22.0), as well as employment in the rubber industry (OR = 7.0; 95% CI = 0.80-60.3), increased risk. In men, current smoking (OR = 2.1; 95% CI = 0.98-4.7) and heavy alcohol consumption (OR = 2.5; 95% CI = 1.1-5.7) were associated with risk, but these factors were not strongly related to salivary gland cancer in women.  - Environmental facts and risk of salivary gland cancer.
Possible association between nickel and chromium and oral cancer: a case-control study in central Taiwan.
Beryllium poisoningChronic beryllium disease is a systemic, granulomatous disease that primarily affects the lungs (Kriebel et al., 1988b). Non-caseating granulomas may also be observed in the skin, liver, spleen, lymph nodes, myocardium, skeletal muscles, kidney, bone, and salivary glands (Freiman and Hardy, 1970). Other symptoms of the disease include dyspnea, weight loss, chest pain, cough, arthralgias, and fatigue (Kriebel et al., 1988b).  
Beryllium-induced toxicity and its prevention by treatment with chelating agents.

Well . . . this should come as no surprise: 

When I went back for a follow-up visit on March 9, the ENT surgeon looked a little angry with me and told me that it was just an "epidermal inclusion cyst". 

I guess that in the month's time between the initial visit and the follow-up visit, he realized that I had tricked him into getting the evidence I needed to obtain treatment.

To confirm this suspicion, I brought copies of MRI images to him and showed him the jawbone pictures. He said it was normal bone.

I showed him the bright nasal turbinates and he said bright nasal turbinates were normal

Really?

I told him that I read that bright nasal turbinates on DWI MRI could be lymphoma, and he told me to stop reading things on the internet.

But I read it in an online Radiology textbook!

I asked for a copy of the pathology report and he gave me one page as I walked out the door. 



When I got home, I realized that page 2 was missing, as was the microscopic description.

So I called the office and asked the secretary why page 2 was missing. She checked my file and said "Oh, yes, it is here, it says "microscopic description", I will send it out today."

10 days go by, nothing in the mail. I called again, and she insisted that she sent it.

Well, send me another, because it must have gotten lost in the mail.

When I finally received page 2, this is what I got:




So I called again to ask why there was no microscopic description, she told me that page 2 contained the microscopic description, and she told me that they can tell it is an epidermoid cyst just by looking at it!!

What??!?

When I asked if I can have the cyst, or get slides or the block, to get a second opinion, she said no. That it has to be ordered thru a treating physician. If no one is treating me, then I can't have access to it. 

She then said that the cyst had "nothing to do with your jawbone lymphoma."


**********************************************


I will update this story soon, I need to do something to recover and get back on my feet.

I will be using inhaled methyl jasmonate and DCA (inspired by the story of Tim McGough whose lymphoma was put into remission with DCA after state-of-the art lymphoma treatments, including Rituximab, had failed him).

I also just started taking Armour thyroid (45mg) and Prednisone (10mg) this year for Hashimoto's thyroiditis and secondary thyroid and adrenal insufficiency. 

Prednisone also kills lymphoma cells

My TSH level dropped dramatically last October, ranging from 0.02 to 0.07, (with normal T3 and T4 levels), and I'm working with an endocrinologist to get it back up to normal.

The TSH dropped soon after taking the FluMist nasal flu vaccine. 

I did not know there was possibly a thin sheet of lymphoma in my nasal turbinates because of some not entirely honest radiology reports by UConn and St. Francis Hospital, and live vaccines are contraindicated for use in cancer patients.

You definitely don't want to be squirting live viruses directly into a cancer.

IF YOU HAVE CFS: I would NOT RECOMMEND FluMist at all!! Get the mercury-free injection instead.

I am afraid I may have caused it to spread to my pituitary? as my pituitary is enlarged at 9mm (average size pituitary for a female my age is 5mm) and there are two bright spots on it that were not seen on the St. Francis MRI two years earlier. 

There is also a pineal cyst. 

This MRI was taken after being on 40mg of Prednisone a day for two months (November and December 2014):

(My localizer image. Bright spots on pituitary, dark mandible.)

(Normal localizer image. No bright spots on pituitary, no dark mandible.)

Wish me luck.
"Whoever survives a test, whatever it may be, must tell the story. That is his duty."                                                                           - Elie Wiesel
But just in case . . .

**************************************************


An important note: The misdiagnosis of 'CFS' can also cause death. Every diagnosis of 'CFS' is a misdiagnosis. Many hundreds of thousands of patients have been misdiagnosed with 'CFS' and so denied an appropriate diagnosis and treatment. For some of these patients, this lack of appropriate care can lead to death. For example, cancer patients are sometimes misdiagnosed with 'CFS' instead of being given the cancer diagnosis and treatments they need, or these treatments are given far too late to save the persons' life. This fact is also only very rarely discussed, and never in the mainstream media.
The 'CFS' scam, the cover-up of the facts of M.E. and the widespread abuse of M.E. patients are ruining countless lives, and are also causing many needless deaths. It is important that the M.E. community (and the formerly 'CFS' misdiagnosed community) does what it can to highlight these deaths, in order to stop the same thing happening to others and so to make these often avoidable tragic deaths count for something. 

We would also like to pay tribute to those who have died, and to make sure these individuals are not forgotten.  At the very least, not by us.
From: M.E. deaths - The Hummingbirds' Foundation for M.E.


*****************************************

And check out this upcoming documentary about thyroid disease: 

The Very Beginning of Being Sick to Death!

"I realized how powerless I really was and became very angry. But between the moments of intense anger and sadness, there was lucidity. I had to understand how and why this happened to me – and to the millions of others – and help others to see it, so we can all change it together." 

It is the same with CFS/dental/cancer patients. We can learn to read our x-rays, MRIs and interpret our lab results, but we cannot get a cancer diagnosis without a dentist saying it may be cancer, and then we cannot get medical treatment without a biopsy performed by an oral surgeon!!

**********************************

Here is an interesting bit of transcript from Dr. Keefe's deposition (thru her attorney) of my treating psychologist:

 20       Q    My question is:  Have any of your patients

         21    ever come in to you with such a specific diagnosis?

         22       A    Yes.

         23       Q    Okay.  How many?  We were talking about

         24    common, so, you know, I'm trying to get a sense.

         25       A    I've worked with hundreds and hundreds of

                                                                   62



          1    clients.  How many clients have come in wondering

          2    if they have a specific diagnosis?

          3       Q    Right.  It's happened before, I take it?

          4       A    It certainly has happened before.  I don't

          5    know if I'd be accurate saying 20 to 50 clients.

          6       Q    Sure.

          7       A    Something like that.

          8       Q    I don't want you to speculate.

          9                 Are there any pitfalls associated with

         10    a specific self-diagnosis like that?

         11       A    The pitfalls of a self-diagnosis could be

         12    if then the person engages in self-treatment that

         13    could be harmful.  That's one, one example.

         14       Q    Sure.  Any others?

         15       A    The pitfalls of a self-diagnosis?

         16       Q    Yeah.

         17       A    The primary pitfalls I think are that the

         18    client is thinking they're crazy or that they have

         19    a very severe illness and it causes them undo, you

         20    know, worry, and, so seeing someone like me, I

         21    could be reassuring and help them and reassure them

         22    that they can get better.

         23       Q    Now, when someone comes in like that, does

         24    it cause you any concern because they've come in

         25    with such a specific diagnosis?

                                                                   63



          1       A    It didn't cause me a specific concern in

          2    this case.  It just makes me wonder, like, wow,

          3    this person is really on the ball, they've looked

          4    into things.



**************************************************************************

UPDATE: April 10, 2015:

Just got my thyroid results back, after just one month (4 weeks) on DCA/thiamine and inhaled methyl jasmonate (10 ml), and my TSH is now 0.42, so it is normal (ref. range 0.3 - 4.2)

Free T4 is 0.96 (low end of normal) and Total T3 is 100 (low end of normal). 

So it appears that maybe these anti-cancer treatments are working.

Who knows. 

Still fatigued and sleepy, but definitely feeling some hope now.

Also, when I called MSKCC in NYC last week, to seek treatment, specifically Rituximab, they told me that I would need biopsy results

I explained to them why I was unable to obtain a biopsy in Connecticut . . . they paused for a bit a then said "It sounds like your dentists are extremely unethical."
un·eth·i·calˌənˈeTHək(ə)l/adjectivenot morally correct.
"it is unethical to torment any creature for entertainment"

synonyms:

immoral, amoral, unprincipled, unscrupulous, dishonorable, dishonest, wrong, deceitful, unconscionable, unfair, fraudulent, underhanded, wicked, evil, sneaky, corrupt;

Now that my TSH is normal, I have stopped taking the DCA/thiamine and methyl jasmonate, and have switched to 1000mg Honokiol 3x per day, for two weeks, and will see how that affects my health and my blood work next. 

Honokiol had efficacy as monotherapy in reducing microvessel count and tumor burden in mice, but in combination with docetaxol, showed a dramatic reduction in tumor volume, lytic disease of bone.



*********************************************

UPDATE April 27, 2015: New dental x-rays taken on April 24 confirms lytic lesions and osteosclerosis under teeth treated by Dr. Keefe 15 years earlier with 78% nickel + beryllium crowns. 

Lytic and sclerotic bone surrounding teeth 21 and 22.
And what appears to be a fleck of metal inside tooth #22. 


Teeth 21 and 22 to the right, which were restored by Dr. Keefe with cosmetic crowns containing 78% nickel + beryllium. You can see the black areas behind the teeth where the metal leached into my bone prior to having them removed and replaced with crowns containing high noble metals and gold underneath four years later. 

You can also see a red swollen area inbetween the four teeth and a big red swollen area behind and under teeth 21 and 22, along the jawbone. 

It's like deju vu all over again. 

Only this time, I got a picture of it. And I have shown friends and relatives, who all agree that they see swelling in the mandible. I didn't get pictures last time until the area was operated on by Dr. Berger and all that fish-flesh material started oozing out of it, only because when I showed it to him, he said it was normal "sloughing" and didn't write anything in his records. That was when I finally started to realize that my doctors and dentists were falsifying my records, something I didn't know was not a crime.

I am going to get the teeth removed now, as I think the metal ions travel down the tooth and I think that there is still nickel and beryllium in those teeth.



Blood work by rheumatologist at St. Francis (a really good guy who started practicing at St. Francis a year after my lawsuit was dismissed, told me that he knows nothing about it) and   shows low kappa and lambda free light chains, which is diagnostic of bone marrow suppression.
Causes 
Bone marrow suppression can be caused by the cancer itself or its treatments.
Blood-related cancers, such as leukemia or multiple myeloma, affect blood cells in the bone marrow. Lymphoma and some solid tumours can spread to the bone marrow and affect blood cell production.

He also diagnosed me with Connective Tissue Disorder, based on my positive ANA titer, speckled.

The lymphomas also include reticulum-cell sarcoma . (A sarcoma is a malignant tumor in the connective tissue. Reticulum cells are a particular kind of connective tissue.) 

*****************************************************


I really do believe that the use of cheap nickel-beryllium-chromium dental alloys, especially in patients who are genetically predisposed to develop lymphoma, may be the CFS. 

These tumors tend to remain occult in the jawbone and conventional dentists know they are caused by toxic metals, so will not diagnose them because they all use these cheap metals to increase their profits. 

It is the one cancer that doctors and dentist won't diagnose unless it "makes itself known" (grows really big and noticeable) because they all know it is caused by dentists. 

These alloys may be causes of other cancers too, such as lung cancer and breast cancer.

Holistic dentists, at least the holistic dentists who perform oral surgery services (I am not against holistic dentistry at all), will not diagnose them, because they cannot diagnose and treat jawbone cancers. They can only diagnose and treat dental infections, which is the differential diagnosis of bone lymphoma. So to them, every lesion in the jawbone is seen as "benign" osteomyelitis, and they make exorbitant amounts of money treating this osteomyelitis, treatment to them being extraction of teeth for $1000 per tooth. 

Please be an informed consumer when you have dental work done. Especially unnecessary cosmetic dental work. Insist that your dentist use only high-noble non-carcinogenic biocompatible metals, or better yet, metal-free restorations. 

Get the MSDS (Manufacturer's Safety Data Sheet) on every material your dentist intends to place in your mouth. 

Full-mouth x-rays are better than a panorex at detecting these lesions when they are early. 

Ask to see your x-rays and ask a lot of questions. 

Remember, you are paying them. Even if it is through dental insurance, or barter, you are still paying them

It should be your decision, not theirs, of what is placed permanently in your mouth. 

And you must understand that once you give your money to a dentist, it will be impossible to get it back. 

There are no refunds, no returns in dentistry. 

They will motion any consumer small-claims court case over to the regular docket and fight you to the death to keep your money. 

According to the Connecticut State Dental Association, everything Dr. Keefe did to me is "the standard of care" in dentistry in the State of Connecticut: 




What the Connecticut Dental Association is saying is that ALL dentists in the Canton area put cheap cancer causing metals, over jawbone ulcers, into your mouth without your informed consent

It must be how they pay for their big homes in Avon and their sailboats. 

"It is unfortunate that you haven't been agreeable to her generous offer."


Yeah, because even he knew that if I didn't remove her carcinogens, the cancer was just going to get worse and I would surely die . . .


Dr. Merkelson had called me and said that they reviewed all of her records and that she kept better records than most dentists. 

Right. She even took a photograph of an ulcer in my jawbone that she never disclosed to me.

He then said "She could not have known . . . " but didn't finish the sentence.

Could not have known what

That I had a nickel allergy? She didn't ask, despite manufacturer's warnings that were never passed on to me from her. 

That a non-healing ulcer in the jawbone is a sign of cancer? She has post-graduate training in head and neck oncology. In fact, her curriculum vitae states that Ellen Eisenberg, head of oral pathology at UConn, was her mentor. 

That nickel-beryllium alloys cause cancer?

The MSDS for Unitbond, the alloy she says she uses in all of her patients, warns her that it does. And dentists are required to know all the possible side effects of their prescription dental devices. 

And she most certainly saw that the alloy was causing cancer in her follow-up x-ray almost two years later, as there was sclerosis coming right off the metal. 



*************************************************


The most recent x-ray and diagnosis of "lesions being present" was done by a dentist in a low-income area of Hartford, and I finally have a record of these lesions in my medical record.

Don't get dental work done in wealthy towns like Avon or Stamford. 

You are much more likely to get ripped off. 

My dentist in the North End of Hartford is the nicest, sweetest and most open-minded dentist I have ever had. 

And she appreciates my knowledge and research and all that I have been teaching her. 


***********************************************

Bill Tyra, father of a victim of medical malpractice, explains the impact of ignoring falsifying records. 

The Connecticut Center for Patient Safety presents real-life stories of medical negligence, its impact on family members, and the need to protect patients' rights and safety.




A prescription for the rogue doctor: part I--begin with diagnosis.
A prescription for the rogue doctor: part II ready, aim, fire.

"Such people know that
sexual harassment, plagiarism or fraud is wrong, but they choose to engage in immoral or illegal acts anyway; they may feel above the law and entitled to transgress against others, Heitt said. . . They don't correct their behavior so that they can become better people, gain friends or be in the good graces of colleagues. They correct their behavior to avoid punishments." ~ A Close Look at the Sociopathic Physician

************************************************

UPDATE: June 4, 2015:

Was referred by my regular dentist to UConn Oral Surgery, to evaluate bone lesions, as UConn has the only oral pathology service in the whole State of Connecticut:


They called and originally tried to schedule me with Dr. Joseph Piecuch. I told them that I had already seen Dr. Piechuch (in 2003) and did not want to see him again. He was one of the oral surgeons, then at Avon Oral & Maxillofacial Associates, who took my money (rent is expensive in Avon) and told me he could not see anything in the jawbone and that the shadows I saw were "water spots". 

They said, "Oh, but that was a long time ago." 

I had not told them when I saw him, only that I had seen him, so I did not know how they could have known that it was a long time ago, except that maybe my case was discussed with them.

And it's not like he is going to change his opinion now, twelve years later, and incriminate himself. 

They then scheduled me with Dr. Song on June 2nd. 

So I showed Dr. Song the red spot behind my jawbone and as I expected, he said that he could not see a red welt.

He also took this panorex, which shows mixed lytic and sclerotic lesions underneath my dental crowns, and said that was normal bone:


This was my UConn panorex in 2013, and the lesions are also present in this panorex, though not as pronounced and they failed to diagnose these lesions then as well:




He said that they do not diagnose or treat lymphoma of the jawbone at UConn anyhow. That I would have to go out of State for that kind of diagnosis or treatment. ?!?

I guess they just don't want to diagnose any side effects to dental devices there because they have a very large dental school. 

I think they are also continuing to cover for Dr. Keefe. 

And they are also covering for her accomplices, including Dr. Piecuch, whom I saw walking up and down the hallway, probably coaching Dr. Song from the sidelines:



Notice that this report and affidavit states that Dr. Brooke Seeley, ENT, sent me to Avon Oral & Maxillofacial Associates for "a biopsy, if indicated", yet Dr. Piechuch's record says nothing at all about a biopsy and concludes that he can offer "no assistance to this lady as I truly do not believe there is any problem that needs surgical correction." It is very cleverly worded too and he says what Dr. Keefe kept telling me "I can see no pathology." I did bring him her x-rays as well, but did not have the photo of the ulcer until the following year:







As expected, Avon Oral & Maxillofacial is one of the five businesses that Canton Valley Dental "likes" on their Facebook page: Canton Valley Dental Facebook Page

Of course they like them. They cover up for them. 


*******************************************


The good thing though, is that they also took an occlusal of my mandible, and while there are still shadows in my mandible, there has been much improvement in the large black lesion that was seen under Dr. Keefe's bridge in 2004, after the removal of her bridge with toxic post and core, so maybe healing is possible once you remove these metals. 

A bone completely remodels itself and replaces all of its cells every ten years or so. 

It also pretty much proves that the metals were the cause, because in functional medicine, removal of the cause is the first step to healing:


2004

2015

But you can also see a large dark area lower down the jawbone to the right of the image. This is underneath the two nickel-beryllium crowns that were placed in my mouth by Dr. Keefe. 

There was a young female resident radiologist present, who said that yes, those were most definitely bone lesions in the mandible on the MRI. And when I told her that I think these lesions are the cause of CFS syndrome and that I just wanted a biopsy and to try Rituximab, which has very low toxicity, she nodded her head in agreement. 

I told her and Dr. Song that I have been studying genetics and even found that I have a gene mutation that predisposes me to lymphoma when exposed to metals. 

But Dr. Song said he could not see any pathology on these radiographs, and Dr. Song's opinion trumps the young resident radiologist's opinion I guess.

He told me that the dark area lower down the jawbone was "air." 

So once again, my medical and dental record at UConn becomes falsified. 

And I can not get the treatment I want.

He even told me that the MRI images I have posted showing the lesions in the mandible have been deleted from the record.

But they are still on my CD, with my UCHC patient number on them. 






Note that in his report above, Dr. Song says there is no ulceration noted.

So, if there was an ulcer in the jawbone, would that be cause for concern?

Would that have gotten me a biopsy?


**********************************************


People die every day without a diagnosis:

There is a hidden epidemic - millions of people living with perplexing illnesses that elude definition and treatment. Undiagnosed: Medical Refugees is a medical documentary about what it is like to exist in a constant state of unknown, struggling with undiagnosed illnesses and rare diseases, and existing as medical refugees in a modern health care system. The film aspires to bring objectivity to this controversial and timely subject by interviewing doctors, medical administrators, and people, both children and adults, who have the misfortune of suffering without a diagnosis. Research and professional opinions combine with gripping stories into an incredible narrative that showcases the strength of the human spirit and the need for change in our medical system.

Documentary: "Undiagnosed: Medical Refugees"


And without a diagnosis, they can't even get hospice care when they are dying. 

And even when the patient does all the research themselves and tries for YEARS to help their doctors come up with the right diagnosis, their doctors tell them they are wrong!

It's evil.


****************************************

If there are any good doctors out there who actually care about the lives of their patients and can get me some Rituximab, I would be extremely grateful. Must accept Medicare. I can travel. 

Thank you.


An October 2011 study from Norway suggests that rituximab can help patients with chronic fatigue syndrome. ~ Wikipedia



I do have a diagnosis of Chronic Fatigue Syndrome.


************************************************

I see that someone from Pfizer in New York was on my blog today. Can you get me some Rituximab?

Pfizer (148.168.40.122) [Label IP Address]    1 returning visit
United States FlagNew York, United States    
(No referring link)
9 Jun21:45:30
9 Jun21:48:29
9 Jun21:48:31
9 Jun21:57:30
9 Jun21:57:32
9 Jun21:57:41
9 Jun21:57:43
9 Jun21:57:46
9 Jun21:59:47
9 Jun22:00:28
9 Jun22:00:31
9 Jun22:03:00
 www.prgf.org/ (Exit Link)
9 Jun22:19:40
9 Jun22:19:43

****************************************

If not . . . I will continue with DCA and honokiol: 

Case report: Sodium dichloroacetate (DCA) inhibition of the "Warburg Effect" in a human cancer patient: complete response in non-Hodgkin's lymphoma after disease progression with rituximab-CHOP.

I started DCA again after two week trial of 1000 grams per day of honokiol, and am now taking both, two weeks on, one week off.

TSH is now 1.39, as of June 6, 2015.

Up from 0.02 six months ago, after live Flu Mist vaccine caused relapse.

My current meds are:

DCA, 1/8 teaspoon 2x per day
Honokiol, 500 mg 3x per day
Vitamin D
Vitamin C
Armour Thyroid, 45 mg per day
Prednisone, 5-10 mg per day, plus 10-20 mg to abort migraines as needed

But I just have a feeling that Rituximab would really help a lot too.

Would really love to work with a doctor, dentist and oncologist who like to use both natural and conventional treatments and can follow me so that we can help others with Chronic Fatigue Syndrome.

This is one cause I am willing to be a guinea pig for.



"You know that the before medicine became a business, the only rule was helping the patient."
Dr. Cox, Scrubs


*******************************************************


Well, I was just told by an oral surgeon in New York that I should get the two teeth, #21 and #22 removed.

If removing the bridge helped my bone to heal, then removing the two teeth that were crowned by Dr. Keefe should help the other tumor. I'm thinking that the nickel and beryllium metal ions traveled down the tooth during the four years that they were on. 

He did a 3D cone beam CT scan and it looked really bad. Big black holes on both sides of the jawbone. And the lesion under the crowns was black with bright white where the "air" is.

I was going to post the photos here, but when I returned home with the CD, there were no images on it, or radiology report.

So I emailed the oral surgeon and told him that the CD was useless to me, and he sent me my money back for the 3D CT scan.

But he also told me something very interesting when I showed him the print outs from my UConn MRI. He told me that his wife is a radiologist and that a radiologist must report everything they see in a head MRI, not just what is in the brain. 

He said it is illegal for them not to do so.

Well, at least he gave me my money back with a big fight. 

Got it back in two days. 

But now I am wondering . . .

When I get those teeth extracted, if the the extraction sites don't heal, and I have an ulcer in my jawbone, will I THEN be able to get a biopsy? 

What do you think?


*************************************************

 6/19/15: 

Panorex sent to me by a reader of this blog diagnosed with Chronic Fatigue Syndrome, with two crowns in his mouth, one on each canine tooth. To me, the bone looks dark and unhealthy above each crown, but his dentist tells him that is "normal" bone:



Please feel free to email me your panorex if you have a diagnosis of Chronic Fatigue Syndrome and you see dark areas under or above porcelain crowns with metal underneath, and you would like your panorex posted here.

And/or if you have had any brain MRIs done and have bright nasal turbinates on DWI. 

And/or if you are AA for Rs1913474.

danaherbert@gmail.com