Is Chronic Fatigue Syndrome a missed cancer diagnosis?
I just received 20 mg of methyl jasmonate today from Australia. I had used this back in 2008 or 2009 for two months and it seemed to help my CFS a lot, but there wasn't as much in the medical literature about MJ back then so I never blogged about it. I just used 20 mg. and got well enough to move on with my life for a while. It pretty much put me in a 4-5 year remission. Partial, at least.
Well, now I have a stony hard cystic posterior cervical lymph node, and have been feeling like I am dying since November 2014 (I will talk about what I think caused the relapse in another post soon, it has to do with squirting a live flu virus, FluMist, up my nose, as I was never told by my doctors or their radiologists that I had cancer in my nasal turbinates) . . . so hoping this will put me back into a remission.
Because I was feeling so ill, my (new) doctor ordered me an MRI at UConn Health Center (at my request, I am no longer a patient at UCHC) on the day after Christmas 2014, and it looks like the "artifact" in my jawbone from December 2000 is still there (and still not mentioned in the UCHC radiology report, see below):
(^ Back when I still had bone marrow in my mandible)
Why are these jawbone tumors not mentioned in my radiology reports from UConn Hospital, which has a large DENTAL and medical school, and where I should have been able to be easily referred to an oral surgeon for biopsy?
What are they hiding?
If the technician had not let me see my MRI scan, UCHC never would told me it was there!
When I asked Thomas Manger, MD (my PCP at the time) if it could be cancer, he simply said "If it is cancer, it will make itself known."
Ok, I get it, early cancer detection is not a possibility at UCHC.
So I was diagnosed instead with "Chronic Fatigue Syndrome" by the neuro-oncologist (she only looked at the brain, not the entire head) at UConn who read these scans in January 2001, Dr. Thomas Manger's report above, based on the 2-3mm cerebella ectopia or "slight chiari malformation", severe fatigue, orthostatic hypotension, positive ANA titer and night sweats seen in Chronic Fatigue Syndrome patients.
"Head, of the advocacy group, said many patients think of chronic fatigue syndrome as “a deeply inappropriate and insulting name.”“We wouldn’t call lung cancer ‘chronic coughing syndrome,’ ” she said."
I eventually went and picked up my scans, and took a bunch of Medical Courses last year, frustrated that doctors can not figure out the cause of Chronic Fatigue Syndrome. And I learned how to read MRIs too. Trust me, doctors know what causes Chronic Fatigue Syndrome:
The misdiagnosis of 'CFS' can also cause death. Every diagnosis of 'CFS' is a misdiagnosis. Many hundreds of thousands of patients have been misdiagnosed with 'CFS' and so denied an appropriate diagnosis and treatment. For some of these patients, this lack of appropriate care can lead to death. For example, cancer patients are sometimes misdiagnosed with 'CFS' instead of being given the cancer diagnosis and treatments they need, or these treatments are given far too late to save the persons' life. This fact is also only very rarely discussed, and never in the mainstream media.
The 'CFS' scam, the cover-up of the facts of M.E. and the widespread abuse of M.E. patients are ruining countless lives, and are also causing many needless deaths. It is important that the M.E. community (and the formerly 'CFS' misdiagnosed community) does what it can to highlight these deaths, in order to stop the same thing happening to others and so to make these often avoidable tragic deaths count for something.Karen Allen Lymphoma Survivor:
“But in the back of my mind, I knew I was sick,” Karen says. “Of course I looked online at my symptoms, but I couldn’t really find anything. I’d had a lump under my jaw that had always been dismissed.
One day in the shower, Karen saw several lumps along her rib cage."
Also, while looking over my newest MRI scans, I noticed bright nasal turbinates on Diffusion Weighted Images.
Bright nasal turbinates could be caused by lymphoma.
"In the smaller volume lymphomas, there is a tendency to spread a a diffuse thin sheet of tumor along the walls of the nasal cavity to envelop the nasal turbinates." Radiological Imaging in Hematological Malignancies, 2004
So it makes total sense that inhaled Methyl Jasmonate would work on Chronic Fatigue Syndrome that is being caused by an indolent lymphoma, as indolent lymphomas spread to the nasal turbinates. This may be what causes the fatigue and headaches and brain fog associated with CFS.
Methyl Jasmonate Protocol: Methyl Jasmonate. 2 grams five times a month via aerosol inhalation. MJ can also be administered in a 70% DMSO gel directly into the hair follicles of the arm pit (for introduction into the lymphatic system), on the scrotum for the treatment of prostate cancer, or directly on surface cancers such as skin and breast cancer.
The intent is that after 3 months on the protocol the immune system will take over.
This is the best inhaler to use (available at CVS):
Methyl Jasmonate and Lymphoma:
Jasmonates induce nonapoptotic death in high-resistance mutant p53-expressing B-lymphoma cells (2005)
From the current medical literature:
Methyl Jasmonate: Putative Mechanisms of Action on Cancer Cells Cycle, Metabolism, and Apoptosis (2014)
More from PubMed
Wikipedia: "Methyl jasmonate induces cytochrome c release in the mitochondria of cancer cells, leading to cell death, but does not harm normal cells. To be specific, it can cause cell death in chronic lymphocytic leukemia (CLL) cells taken from human patients with this disease and then treated in tissue culture with methyl jasmonate. Treatment of isolated normal human blood lymphocytes did not result in cell death."
I also intend to use Dichloroacetate (DCA) this time, which I will blog about next and resume taking after the swollen lymph node is removed. I did take it for two days, on Valentine's Day and the following day, but felt like it was shrinking my lymph node, so I stopped. That lymph node is all I have to get a diagnosis, as no oral surgeon has been willing to biopsy my mandible for the last fourteen years.
"DCA is most definitely not quackery." ~ David Gorski